AANEM News Express

AANEM News Express

May is ALS Awareness Month and GBS/CIDP Awareness Month!

AANEM is pleased to play a role in spreading the word on amyotrophic lateral sclerosis (ALS), Guillain-Barré syndrome (GBS), and chronic inflammatory demyelinating polyneuropathy (CIDP) during ALS Awareness Month and GBS/CIDP Awareness Month this May. Further information about each of these diseases is outlined below as well as available AANEM resources to help expand your knowledge.  
Amyotrophic Lateral Sclerosis (ALS)
ALS is often called Lou Gehrig's disease, named after the famous baseball player who died of the disease. ALS is a motor neuron disease that destroys the nerve cells responsible for carrying signals from the brain to the muscles. When these cells die, we lose the ability to control the muscles that enable us to move, speak, breathe, and swallow, and the muscles gradually weaken and waste. ALS is also often associated with spasticity, muscle spasms, and exaggeration of the reflexes. The majority of the symptoms of ALS are directly related to muscle weakness and spasticity. Read more
AANEM Resources on ALS
Guillain-Barré Syndrome (GBS)
GBS, also known as acute inflammatory demyelinating polyradiculopathy (AIDP), can occur anytime in life and in anybody - male, female, young, or old. This rare syndrome can be found in 1 out of every 100,000 people. It is a disease of the nerves with significant weakness as the primary symptom. Muscle weakness occurs because of an inflammation of nerves located outside of the brain and spinal cord. These nerves are unable to transmit "information" at a normal speed to the muscles, which prevents the muscles from responding in an efficient manner, and causes the weakness. Other symptoms may include numbness, tingling, and pain in the arms and legs. The cause of GBS is unknown. Read more
AANEM Resources on GBS
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disease of the nerves with weakness, numbness, and pain that can occur anytime in life. Nerve roots swell and destroy the myelin sheath (fatty tissue) around the nerves, which causes CIDP. This, in turn, impairs the function of the limbs. The progression of symptoms is variable. There may be a slow decline over 8 weeks or more, with slow improvement over months, or remissions and relapses over the course of years with possible incomplete recovery. What sets CIDP apart from other diseases similar to it is that there seems to be no viral infection present approximately 3 months before the disease is apparent. Read more
AANEM Resources on CIDP

For more, see the CIDP video courtesy of GBS|CIDP Foundation International
AANEM Foundation’s Clinical Research Fellowship on CIDP
The AANEM Foundation for Research & Education is pleased to announce a new clinical research fellowship opportunity focused on CIDP. The application deadline for this fellowship award is October 15, 2018. More information
Make a Donation
During May as we recognize ALS Awareness Month and GBS/CIDP Awareness Month, consider making a donation to the AANEM Foundation. Your donation will fund scientific research to help find treatments and cures for neuromuscular diseases like ALS, GBS, and CIDP. Donate today.  

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